Back again

I'm back on my blog and back in the hospital, my city residence as I like to call it. I haven't written anything for ages 'coz my laptop has been on the blink and shuts down randomly and if I'm half way through something I lose the lot.

The hospital is a bit crazy today, it's changeover day and there's a lot of new faces around. It's not a problem for me but the new doctors on the wards are rushed off their feet. I turned up here just after nine and almost straight away had my line put in, but I'm still waiting for my immunoglobulin to turn up..I'm sure it's around here somewhere and everyone is too busy to get it.

I come in every five weeks now, that is five weeks at home and one week in here. I'm a lot stronger now and have hardly any drop off in power or co-ordination. It's not that long ago that I used to have to use my wheelchair to get in here for my treatment. I can walk a good distance now before my legs start giving in and on a good day I can run a bit, but that really does wreck me so I avoid it as much as I can. I can cycle quite a bit better now but not at any kind of pace, it's great to get out and get some air in my lungs.

When I think back on where I was last year and the year before I reckon I could put all this down as a life changing experience. It's certainly changed my perspective on things and what I've figured out is to live life and get out and meet people, visit places, have fun, go and see the things that you've always talked about seeing, and most of all don't get trapped inside the same four walls...there's a whole world out there and we don't get a second chance.