I know I should be heading off to my city residence right now but I'm really not going to untill Monday. Today my toes have gone numb and my hands are starting to cramp up, typing is tough today. I can just about stand and I can take about four steps and I fall, that bit isn't so nice because it takes my ages to stand up again. I'll be using my powered chair for most of the day around the house (the Invacare Typhoon2, the Rolls Royce of power chairs). I'm really luckey to have it, my occupational therapist sorted it out for me and it fits like a glove. Before I got ill I never knew that wheelchairs and power chairs had to be custom fitted or you could end up with a whole load of other problems from sitting wrong all day.
Coming down the stairs was tricky, it was a case of holding on to the banister for dear life and each step nice and slowly. It's funny the way you adapt when something like this happens, all around the house I have what I call anchor points, these aren't special fixings in the wall to adapt the home or anything, they're just places and things that I can lean on or grab onto to stop me falling. I do this now without thinking and when I'm at my most mobile I can scoot around the house and nobody could tell there was anything wrong, but take me out of my comfort zone and I'm as fragile as a baby deer, ermmm I ment as fragile as a wounded stag, that sounds a lot better.
I guess everyone has their little anchors around the house, your knee on the edge of a couch or your elbow on the sideboard, your shoulder against the door frame or your bum on the edge of the kitchen table. I can map mine out in my head and I reckon I could find them in the dark because I depend on them so much, just like all the people in my life I care about when I reach out I know they'll be right there.
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