Brian Murray's Blog

''This country is My canvase, I leave paint trails where I go"..Frank Turner from 'sleep is for the week'


Thursday, February 25, 2010

everything comes to those who wait.....for me!

Well to be honest it's been a rough couple of weeks. I came out of hospital and did all the things that I really shouldn't and here I am paying the price for not listening to the doctors. I don't like being stuck in a chair all the time and having to suffer all the pain and discomfort every time I want to make a coffee or make some food. I should be breezing around the house now but instead it's like one step forward and two steps back and then fall over. I plan on having a quiet weekend though and get out of the chair for a few days next week, but I don't know if it's going to be possible with this being a big rugby weekend...I'll try.

On Monday I'm going to play a bit of music with a couple of friends, and it'll be the first time in a long time that I've played out in public. I should be alright though. I've been wanting to do this for ages and I've even been doing a bit of practice, I've noticed that I'm forgetting some song words here and there, I don't know if it's the drugs I'm on or old age but I might have to bring some cheat sheets.
The pub we're heading for is a gem of a spot, there's not many like it left and I hope it never changes or modernises. It's in a little spot called Ballyagran, which is basically a crossroads about five miles out of town. The owner, Billy, I've known for years and I'm hoping he'll be lashing out the guitar as well.

There's too much of what I call 'tradition' being lost these days. I'm pretty sure that every generation has said that but I'm coming from a different angle. All the things that I like are pretty organic, like music played on acoustic instruments and food cooked over flame. I know the world evolves and I'm as likely to use a microwave as the next person but I think we're coming close to the end of the line. When people stooped playing acoustic guitars in the 60's they picked up electrics, and the same with all the other instruments, and the fire has been replaced with microwaves and hyper grills and home espresso machines. But then the electric guitar or the keyboard has been replaced by the mp3 player, the d.j. mixing console and a guitar video game. The microwave has been stumped by the low cost of take-away food from all over the world, people can't cook anymore and we're heading for a generation that won't be able to play an instrument at a party for a bit of fun.

I went down to the river for a look the other day because the trout season has just opened and I didn't see a single soul fishing. My wife and daughter brought me to a local beauty spot on Sunday and even though there were twenty cars there there was only twenty two people.(yeah I know;I am that sad that I counted) All the people that were there jumped out of the car, walked their dog up and down the path for ten minutes and left without stopping once to look at the beautiful lake and fine hills around it.

So what I mean is, there's a lot of change in the world and if we're not careful we'll change once too often and completely leave the past behind. Music will always evolve, but without musicians to create it and play it, it will just turn into white noise. People will eat what they like but soon the distance between the source of the food and the meal will be too great and all we will have is generic protein biscuits. Dogs will always need exercise and people with hunched shoulders will drag them on a lead but some day we will never hear the word 'hello' again and the distance between us will get greater and our eyes might never look up at the wonderful world around us.

Thursday, February 18, 2010

Some people make me mad

I went out today on my power chair on my own. This was the first time I did that, just me and my chair and the radio on my mobile phone. I'm not really supposed to go out alone but enough people know me in this town that I'm fairly sure that if I got in some difficulty there would be somebody to throw a blanket on me or get help or something. It was cold but dry.

Coasting around the town was fun, what was even funnier was the tussle I had with an oil truck. This idiot cut right across me and blocked the only ramp onto the footpath, so I wheeled in front of him and stopped so he couldn't go forwards anymore and made him back up out of my way. I never did like bad drivers.

Another thing I don't like is people who find the most pathetic reason to moan and whinge and make out that they have life so bad and everyone else has it good. I met a gem just like this in hospital last week. I know that people cope differently with problems and that it's not really my place to judge but this guy got up my nose.

He was in for one night for a check up on one or other of his innards that was playing up and we got talking about sport. I asked him what he was in for and he began. Every year he had to come to hospital for one night to get himself checked up, for a condition that could never do him any harm but did mean that he couldn't drink. He explained to me that his life was destroyed since getting ill and found it very hard to cope. Of course I had to ask how much he drank before he got this condition and he said 'never touched the stuff'... This is a quick immediate recap, his life is destroyed because he couldn't drink, which he never did anyway, and had to come to hospital one night a year for a mild condition that at worse would mean he might have to take a tablet every day. Now I don't want to sound like a moaner or anything but I found that a bit hard to take.

I really felt like exploding at him and pointing out that there are worse things in the world that could have 'destroyed his life' and he has kind of got off lightly but I just sat there in silence as he complained and moaned that he could never plan a holiday on that week every year because he had to come in for a night, and how he has to loose a days pay and had no way of claiming it back, or if they do put him on the tablet every day how this could upset his day and his routine, and everyone around him felt sorry for him because he has to go to hospital one night a year.

Yes I sat there in silence while he told me that this was the second year he came in and the food was getting worse and the nurses were not helping him with anything, even though he could have probably lined out for Shannon first team on the wing that weekend.
(Just a quick byline; the food in Cork University Hospital is great, and I'm qualified to know.)
Yep this guy waffled on for three hours, yes three hours about how bad it was and all the time I just sat in my wheelchair and said almost nothing.


The ward I was in saw 15 patients in the five days, I was the only one who stayed the full five, I get to meet a lot of people and I like that, and that's why I sat there in silence. Eventually we were joined in our chat by other patients as they returned from treatments or physio or whatever. The first was a guy I mentioned in a previous blog, he explained that he had less that two years to live, and had a smile on his face all the time. Next up was my deaf and dumb friend who kept us all smiling, then was a man who had early onset altzimers and shook our hand and told us how nice it was to meet us...you can see where this one goes by now. All the patients came in and each one with their own set of problems that they never seemed to complain about. At this stage my new room mate was onto me and tried to make an exit but he found a seventeen stone thug in his way, me. There was no way he was going to be left wallow in self pity in the quiet of his bed, no way. I told him about what was wrong with me, even though he never asked. After that I told him about some other friends of mine that I meet in hospital, the 28 year old who had a massive stroke and wasn't found for three days, the 22 year old who carries an oxygen bottle with her everywhere because her cystic fibrosis is so bad, the many brave people who have to come for hours and hours of dialysis three or four days a week but carry on with their lives without so much as a mention of it, all the time knowing that if they do get picked for a new kidney that someone has to have died to give them back their life.

I didn't shove this information down his throat, I just steered the conversation in the right direction. I didn't want to make him feel guilty or sorry for anyone, I just wanted him to have a look at what happens in the world outside of his little box.

The next morning he wished us all well and hoped we get better and off he went for a year. I don't know if our chat will ever change him but it changed me, the next time I meet someone like that I won't sit in silence, I'll just leave them alone to wallow in their own self pity and I'll talk to people who nave a great outlook on life and live for today, like all my friends do.

Tuesday, February 16, 2010

even the stupid can do stupid things

Here I am back in the land of normal folk. My little trip to hospital this month didn't throw up many surprises. The doctor has given me a new drug to take, basically it's to stop the other drugs he gave me doing me any harm, which I find a bit odd but he's the one with the education in healing people so I suppose I should do as he says, which isn't something I'm good at.

Yesterday was a good example of that. My daughter wanted to go on a shopping trip to Limerick so I thought the trip out would do me good. Now I'm the only person I know that needs to recover after coming out of hospital, having somebody Else's' antibodies pumped into me for five days kind of takes it out of me a bit, so the doctor always says to take it easy for a week. My idea of taking it easy is not exactly everybody Else's' so I thought a trip into the city would do just fine. Normally yes, anyone with a modicum of sense couldn't see a trip like that as anyway harmful and neither did I. I thought it would be such a relaxing trip that I decided that I'd leave my wheelchair at home and rely on my walking stick. This was not a good idea.

My plan was to park up and go for coffee with my wife while my daughter and her friends shopped. I guessed it couldn't be far between the car park and the lifts, and then not far from the lifts to a coffee shop so a walk of less than 200 yards was what I was guessing and I was right. We parked, I walked a bit and then sat for coffee and was thinking about lunch.

Sadly though this is where my plan started to go wrong, what I got was not anything related to a cup of coffee so I reckoned if they couldn't get a cup of coffee right they were unlikely to get anything else right and I threw a sulk and wanted to go someplace else. After a bit that's just what we did and this of course was going to add to my walking.

The second coffee shop wasn't far from where we parked and any able bodied citizen would have got there in less that two minutes, but it took me nearly ten, of course no amount of telling me that I was doing more harm than good was going to stop me. The coffee was good in coffee shop number two but the food didn't look great so again the toys were well and truly thrown and I had to go someplace else, of course I did because an award wining coffee shop in Limerick wasn't going to do it for this blogger.

There was about fifty yards to walk from the car to the comfort of a top class burger joint in Limerick and it was pure torture, I wouldn't give up, no way. I leaned on my walking stick so much it was almost bent in two and my walk looked like a demented duck with a limp. Lunch was good, I had a smokestack burger with chili fries and good coffee.

Now where has this left me. Well last night I was so uncomfortable that I couldn't sleep. I finally nodded off in front of the telly watching the winter Olympics and messaging a good friend on facebook. When I woke up I couldn't walk at all and it took me an hour or so to get going. I've spent the day in pain and I really feel like an idiot because I could have so easily ended up back in hospital.

On the plus side, my good friend and I managed to write a song while messaging on facebook, the recording will be posted. But best of all was this morning while I was lying around feeling sorry for myself, having gone back to bed, my daughter brought me breakfast in bed and thanked me for coming with her to Limerick, told me how well I'd done with my walking and reminded me that that was the first time I'd walked out in public since June last year which never occurred to me. I was so wrapped up in being a martyr that I'd forgotten that this was another first for me and maybe I should pay more attention to what my little girl says more often.

Thursday, February 11, 2010

I'm still here

They say when life throws lemons then you should make lemonade, and I couldn't agree more.

Here I am in hospital and I made it through 'till Monday. I really should have come in on Saturday and one of my doctors was none too pleased, I think she was just in a bad mood because me waiting 'till Monday doesn't create any more work for her, she is a great doctor though.

A friend of mine has let me use her broadband dongle while she's gone for an MRI scan and that's why I can post this blog, I think I'll invest in one of them for the next time I'm in here.

It's been a pretty uneventful few days as hospitals go but there are some really nice guys on the ward. There's a guy in the bed opposite who is deaf and dumb and has managed to keep us laughing all the time with his antics, from getting on one knee and pretend proposing to one of the nurses to pretending to be asleep when the porter comes to get him for physio, and then popping his head out from under the blankets with a huge grin on his face when the porter gives up and goes. He has an amazing ability to communicate without words or sound. He really loves life, every minute of it and shows it in every movement he makes.

The guy in the next bed to me told me he has incurable cancer and has been given 12 to 20 months to live. He has a constant smile on his face and is looking forward to filling his days as much as possible with the things that interest him. He also told me that he wants to die while attending a German s and m party, but hey I'm not here to judge, but that's what keeps him smiling. He asked the doctor last night for a prescription for Viagra as he intends on using a lot of it, fair play to him.

The world is full of all kinds of great people and each one is an integral pert of the reason this world is such a great place. My two room buddies have kept me smiling for the past few days and I hope I've done my bit to make them smile as well.

Now where's my lemonade I'm thirsty.

Sunday, February 7, 2010

It's the little things

It's Sunday and my entire body is very angry at me, my own fault of course. I'm sitting in front of the TV and I'm just about able to type. My arms have just about given up and every thing from mt fingertips to my shoulder is either twitching or numb or going into spasms.

I've just had to move my laptop because in the time it took me to type the previous paragraph I've been reduced to one finger on each hand typing and I can feel my left hand is about to give up totally. From now untill tomorow at the hospital I will be totally reliant on the people around me to do everything for me, that's how quick I can go from being able to make a sandwich to not.

I of course won't be writing a blog untill Friday so everybody have a good week and if you need me ring or text, these are the little things that cheer me up no end.

Saturday, February 6, 2010

I'm still here,..and there's rugby on TV today

I couldn't sleep last night, it happens a lot but I could have done with a good night's sleep last night. My whole body was twitching and going into spasms for hours, until five o clock, when I just gave up and got up and watched a bit of telly where of course I immediately fell asleep on the couch. I was woken at nine by my wife and I was too stiff and sore to move so I stayed put until eleven and I really wish I hadn't because right now I feel like I slept in a washing machine.I used to be able to go a long time with very little sleep but now I need 8 hours or I really get messed up.

Right now my hands have almost stopped working and I'm finding it hard to pick anything up or even type. My legs are pretty much useless so I'm in the power chair all day. It's a clever piece of kit, it can turn on it's own axis and fit through every door in the house, I'd be lost without it because my arms aren't strong enough to push my wheelchair.

Today I'll be parked in front of the TV watching the opening 6 nations matches and shouting at the commentators for getting it wrong. Ireland have a Italy in Croke Park and England are hosting Wales. I just hope there's going to be some good rugby played because this is one of the reasons I haven't gone to hospital yet, so come on ye gods of rugby, don't let me down.

Friday, February 5, 2010

Here I am, not in hospital

I know I should be heading off to my city residence right now but I'm really not going to untill Monday. Today my toes have gone numb and my hands are starting to cramp up, typing is tough today. I can just about stand and I can take about four steps and I fall, that bit isn't so nice because it takes my ages to stand up again. I'll be using my powered chair for most of the day around the house (the Invacare Typhoon2, the Rolls Royce of power chairs). I'm really luckey to have it, my occupational therapist sorted it out for me and it fits like a glove. Before I got ill I never knew that wheelchairs and power chairs had to be custom fitted or you could end up with a whole load of other problems from sitting wrong all day.

Coming down the stairs was tricky, it was a case of holding on to the banister for dear life and each step nice and slowly. It's funny the way you adapt when something like this happens, all around the house I have what I call anchor points, these aren't special fixings in the wall to adapt the home or anything, they're just places and things that I can lean on or grab onto to stop me falling. I do this now without thinking and when I'm at my most mobile I can scoot around the house and nobody could tell there was anything wrong, but take me out of my comfort zone and I'm as fragile as a baby deer, ermmm I ment as fragile as a wounded stag, that sounds a lot better.

I guess everyone has their little anchors around the house, your knee on the edge of a couch or your elbow on the sideboard, your shoulder against the door frame or your bum on the edge of the kitchen table. I can map mine out in my head and I reckon I could find them in the dark because I depend on them so much, just like all the people in my life I care about when I reach out I know they'll be right there.

Thursday, February 4, 2010

New ward for the patient

Just as I was about to ring the hospital this morning they rang me. I'd like to say it was a kind of karma thing but I'd forgoten that they were due to ring me today to let me know if they have a bed for me on monday, and they have. My body is shutting down a bit more every hour so the race is on, will I make it untill monday or will I be admitted through A&E sometime over the weekend.

The doctors tell me that if I feel bad to go straight to A&E but I think this time I'll ride it out and see how far I can push it. I'm going to be admitted to a new ward so nobody there will know me well enough to give me a hard time for waiting untill monday, if I was on my usuall ward they wouldn't stop giving out to me for the duration but that's because they want what's best for me. If I'm right, and I never am, then if I do as little as possible over the weekend then by monday I should still be tweleve hours from total quadraplegia.

Now; anyone who knows me will know that I don't take things like this lightly and there must be some logic in my plan and here it is. If I go in before monday I'll be sleeping on a trolley in A&E untill monday, not that I mind because I've slept in worse places but I won't get my juice untill monday anyway. And of course there's the rugby at the weekend, I really don't want to inflict me and my constant commentary on the poor patients of CUH, in fairness they're sick enough without me making them worse.

So here's the deal, I'm going to try and make it untill monday and if I can still type over the weekend I'll let you know how it's going, and you guy's have to ring or text a friend that you havn't spoken to in ages but keep meaning to just to see how they are and then start a blog about how that makes you feel, and I'll look forward to reading them.

Wednesday, February 3, 2010

Here it comes again

Just when I was getting used to being able to walk my little illness stuck it's leg out and tripped me up. I know that this is what I call my failure week but it still takes me by surprise. This morning I walked down stairs and made tea. Usuall checks to my person, and nothing was wrong, and by lunchtime I was still okay and carried on. In the last three hours I've gone from walking around the house with a cane to being back in my wheelchair. My hands are starting to go numb and my feet are feeling cold.

In the morning I'll ring the hospital and tell them I'm on the way. They might even have a bed ready for me this time, but I don't mind sleeping in A&E, all I really want is my IvIg and I'm happy. It'll be nice to see the hospital gang again and see how everyone is doing, and of course it'll be nice to give Adel a hard time for not getting my coffee right.

I think I'm lucky really that I can just pop to hospital for my temporary cure, I see so many people in there that get ill and stay ill. So tonight I'll check that my hospital bag has all the things I need in it and tomorow or friday I'll head for my city home for a bit and relax.

The one thing that's bugging me though is that the 6 nations starts this week and I won't be able to use my usuall colourfull language while I watch it, I'll have to be a bit more polite or Adel might just throw the coffee over me